Sunday 30 November 2008

I expect today to be a difficult one, it's Lights of Love at Willen. It will be the third year that I have gone, but the first time Hannah has been. It is always such a lovely service and even though last year I was really upset because it was so apparent that I would never have another Christmas with Mike, it somehow gave me the push I needed to go home and organise some sort of Christmas for Hannah and Cameron. Up to that point I had decided that I wasn't going to bother with decorations or any of the normal traditions, but it made me think that Christmas isn't going to just go away, however much I wanted it to. I needed to start dealing with it - however tough Christmas is this year it can never be as bad as last year and hopefully will never be as bad again. When I look back I often wonder how the hell we have coped and got through to where we are today.

When I think that we are going to spend Christmas with my Dad and brother and his family this year I think of happy times, when I think of last year sitting the whole of Christmas just holding Mike's hand saying our last goodbyes it just destroys me - moving on is hard but it really does have to happen for everyones sanity. Mike still helps me even now, when I get upset I can hear him saying "what's crying going to solve? cheer up and carry on" x

Friday 28 November 2008

I have had a couple of quite difficult days. I have started on the mammouth task of writing the Christmas cards. Last year I sent so few, I also could not bring myself to write who presents were from on Christmas labels because I had a gut feeling in the summer that Mike was going to die at Christmas and so wouldn't put his name on them just in case. Over the year I have obviously had to write many birthday cards from just the three of us, but sat writing Christmas cards I found tears rolling down my cheeks. I've beaten myself up about it a bit, remembering when we were first together and cards were written from Mike and Jo and then the kids added to them as our family grew. Now our family is missing such an important and loved person, it's not just the space in the Christmas card where his name should be, it's the void in our lives - I am having a day where I hate cancer, it's taken two of my closest family in the last few years and i'm really thinking why us? what did we ever do that was so bad?

Tuesday 25 November 2008

As Christmas is fast approaching and the shops are now full of people and Christmas Carols it makes me realise how we really didn't do Christmas last year. As soon as I realised Mike had started deteriorating rapidly I shopped months in advance and never got involved in the chaos of it all. I sent very few Christmas cards and our decorations at home were very minimal.

This year I haven't been half as organised as I was then. It isn't helped by the fact that Hannah and Cameron don't have a clue what they want and even at 20 and 18 years of age seem to think that it still all magically comes from Santa!

Tomorrow is eleven months since Mike died, not a day goes by that I don't think about him. Time is making things slightly better in as much as I remember the good times and am able to blot out some of the bad now. Initially all my thoughts were of that horrendous illness and specific days and events in that journey - now I remember happy times and fun we had, he was not only my husband, he was my very best friend and I have lots of wonderful memories to keep for ever x x

Monday 17 November 2008

I can't believe that I haven't blogged for a week. I try to convince myself that the fact that I blog less frequently means that I am beginning to come to terms with everything. The blog was always very much my therapy and my outlet to the big wide world, over the last couple of months I have felt that I have been coping much better and am much more relaxed. I am confident the kids have learnt how to smile again which is a great comfort to me - not a day goes by that we don't have a conversation that involves Mike -It is often when something funny happens that he would have been amused at or when something that is a bit of a challenge happens and I ask him out loud "why did you leave me with this ****?"

I went to the Willen Hospice Memorial Service yesterday. It was a really lovely service, but then Steve Barnes did it so it was always going to be. Steve has such a flair for capturing your attention and everything he said really made you think. I couldn't believe how many people I recongnised, both staff and families that I had come into contact with through Carers, taking Mike to day hospice and during Mike's several in-patient stays - it was really comforting.

I am adding a poem to this blog which was read at the service by a director of Willen, who I actually know as the grandad of the best Saturday girl I ever had at the shop. I don't normally consider myself as sentimental about poems but this really touched a nerve and made sense about the having to let go and move on.

From The Wisdom Trees by Walter A Kortray

I have come out to see the Wisdom Trees,
to see their summer green take fire,
red and gold in the autumn sun.
Too soon, these leaves, this autumn fire, will fall
and turn to crackling ashes at my feet.
Why must they fall so soon?
Lying down on the leaf-littered earth I sleep and dream,
a special dream of tying leaves on wisdom trees. Leaf by
leaf I bind them on with threads of gold and green.
A labour of love , tying leaves to to stop the fall from falling.
A labour of love? no a fool at work!
The trees are wise they know when to let go.
They understand that in the economy of God's creation
part of life must fall away each year,
Silently they accept
and wisely they let the leaves fall.
The dream is over and I heed its lesson,
part of learning life is learning to let go.
To learn the verdict of the seasons
and willingly let the leaves fall...
.. and think of another springtime.

Sunday 9 November 2008

I can't believe that I stayed up until 4.30 am with Cameron to watch the boxing and when the the main fight was about to come on I had to give up and go to bed. I am not convinced that Cam stayed awake to watch it as I had already had to nudge him a couple of times before. I think the other shocking thing is that when I had the shop I would have already done an hours work by the time I went to bed.

Hannah and Cameron have both got to be at work at 10 am today, there is always lots of conflict when they both expect me to get them to opposite sides of the city at the same time. Obviously one of them has to be early, but for them making the decision who is impossible.

I am going to the cemetery today, it looks quite sad at the moment, I am still waiting for the headstone to be fitted. A lot of the plants have died off but it is not worth putting new ones in until the headstone is done. I can still have my chat with him though and tidy it up as much as I can.

Tuesday 4 November 2008

I called into the carers group at Willen yesterday to drop off a cheque for the money that Cameron and Adam raised running the Swindon Marathon. I can't believe the reaction of people that I have told that I went there - people seem to think that it is weird that I can, in my eyes it is a pleasant place that helped us get through to where we are today. The experiences that we had with Mike being in hospital at certain times throughout his illness were horrendous and from the first time we went to look around Willen just days after being given the prognosis Mike told me that was where he wanted to die and to never be afraid there, I never have been afraid and neither was he.



Thankyou

My first thank you must go to Mike, not only my husband but my very best friend. He has always been there for me and now I am doing all I can to be there for him. Unfortunately, nothing can prepare you for the devastating news that we received last June, and no text book can tell you how to behave and how to deal with it. Mike has been so brave throughout all of this, we have laughed together and cried together, but Mike has found the strength to help me to continue to plan a future for me, the kids and the business. He really is a very special person.

The Kids

I don't know where I would be without Hannah and Cameron (though probably a little less grey). I need them to know that I really love them and appreciate them, even if sometimes because of the situation here stress gets the better of me and I snap. The memory of the day that we told them that Mike's illness is terminal will haunt me forever. I felt so helpless, it is the first time that a kiss, a hug (or money) couldn't make the news any better for them. Mike insisted that he was the one to tell them, I can't imagine how hard it was for him, I think he's amazing and although it's hard to think of it now I think the kids will respect him for it too. Love you both x x

Jean & Eddie

I need to do a big thank you to Jean and Eddie (Mike's mum and dad). They arrived the morning that Mike was first admitted to hospital and stayed for fourteen weeks. They have been a tremendous support throughout all of this. Obviously they are grieving too, but the support that they have given to Mike, me and the kids has been fantastic. They have helped both emotionally and practically, without them I do not know what we would have done - All the shopping, cooking, washing, ironing, cleaning and dog walking was done by them. Jean is the only person that has just hugged me and allowed me to cry until I have no more tears left. Eddie did loads of DIY jobs that Mike had planned for years (Mike has always liked the power tools and planning projects but not been very keen to do them). Between them everything was cleaned, painted, cleaned again and made sterile for Mike to have the very best chance of not getting any infections throughout his chemo. I also thank them for appreciating that when things had settled slightly and I had the business organised they allowed us the time to get back to "normal" family life.

Family

Everyone has been brilliant, I worry that if I start naming people I might forget someone, but I will attempt to without sounding like I have won an Oscar or something. Gill (Mike's sister) has been great - phones, texts and visits regularly (always good on a Saturday night when a visit from Gill and Pete includes a KFC). She sends good humoured cards regularly which always manage to make us smile. Karen (Mike's sister) phones and visits regularly, her extensive medical knowledge has helped enormously by helping us to ask "the right questions". Karen did food shopping for us when all we had in the fridge was garlic bread and jam (not a nice combination). Nicky and Adam (our niece and nephew) have helped us by just being themselves. They text and email the kids and visit whenever they can. They manage to make life seem normal. Nicky continues to call Mike by her pet name Uncle Tosspot which always lightens the mood.

More Family

My dad has always been at the end of the phone for me, I know that if I needed him he would get in the car and be here. I don't speak to my brother Mark as much as I should, for some reason when I come off the phone from a conversation with him I get really upset. Our aunties, uncles and cousins have been great too. A special thanks to Chris and Wendy who send cards at regular intervals to let us know that they are still thinking about us - this means a lot.

Newport News

I don't know how to thank Marie, Ingrid, Judy (& David) and Mel enough. Without them at times there wouldn't have been any Newport News. Everyone has changed their hours, extended their hours, changed their jobs to make sure that 900 customers get their papers every day, seven days a week. They have not only worked incredibly hard they have always been sensitive to the situation. Thank you all so much. Not forgetting the delivery boys & girls who 99% of the time have been fab too. Our customers have been really thoughtful too. In the first month of Mike's illness he received over 100 cards. Many customers ask for updates on Mike's progress on a regular basis. Newport is a place where news travels fast so most people know what is going on quite quickly.

Highfield

Thanks to all Mike's old colleagues from Highfield. Emma has been great, phones and visits regularly and helps keep Mike up to speed with any gossip he needs to know about. Cam, Steph, Matt and Sally have all visited too and brought with them their share of "important information" for him, not forgetting the fact that Sally ran a half marathon and raised funds for Willen Hospice - I really appreciate this as you will see below they have been a tremendous support to all four of us. Sherilyn has phoned regularly and visited - Mike was really disappointed that he was not well enough to make it to her wedding at Christmas. Sadly, Sherilyn is now ill too and our love and thoughts go to her, Mike and the girls. I hope I haven't forgotten anyone because I know you have all been great.

And many more..........

There are so many more people that have helped in so many ways. I need to mention Andrew, my old boss - he keeps in contact at least weekly and as always is a really great listener. Sadie from Country Clover Florist has been great, arrives with flowers every time the going gets tough. Sadie is also training hard to run The London Marathon in aid of Willen Hospice, although we are really proud of her for doing this I do have concerns that my chocolate sales are falling whilst she is in training. Alex and Ryan Pink from the cycle shop across the road have visited Mike in hospital and at home - they always manage to make him laugh. The list is endless..........

Willen Hospice

A massive thank you goes to Willen Hospice. If this site gains nothing else I would like people to be aware of the amazing work that they do. I really wish that I could do something to promote the fact that they give you so much support in life and that the hospice is not a morbid place at all. Mike attends the day hospice every Wednesday from 10.30 am to 3.30 pm. It gives him a chance to meet other people facing the same illness and the opportunity to do pottery and painting. I go to the carers group at the hospice on a Monday afternoon, all we do is eat cake and drink tea (not good for the ever expanding waist line, but very good for the soul). It is the one place in the world that you can talk about how you really feel and people really know how you feel because they are all going through it too. The family support worker, Sandy is brilliant, she has supported us all so much - I don't know where we would be without her. Liz is another star from Willen, she is the first contact that we had and has guided us the whole way through this horrendous journey. Like Sandy, Liz is always at the end of the phone to give advice and visits regularly as well.

If you click on the link below you will be directed to their website.

www.willen-hospice.org.uk

Willen Hospice

Willen Hospice