Another night on the sofa, but from 11.30 pm this time. Liz from Willen rang yesterday and advised me to get strips that you put across your nose to stop you snoring - I did this, and Mike agreed to use them as long as I did it too. It had no effect on his snoring at all, he came to bed at 11.00 pm and by 11.30 pm I could not handle it anymore. He has always snored to some extent but nothing like we are having now - it is so loud and continuous, in the past one jab in the ribs has been enough to shut him up, but I can actually shout at him and last night I slammed the bedroom door but he still carried on.
Mike slept most of the day yesterday but came with me to meet Hannah from work and then he wanted to go to Tesco's - that was an experience not to be missed! Hannah pushed the wheelchair and I pushed the trolley. It is almost like having another child - all he was interested in buying was treats like special cheeses and fancy chocolate Mousse and seemed to forget that we actually needed to buy some basic food as well in order to have meals this week. Thankfully we can all laugh about it and Hannah was very tolerant of the fact that he was quite demanding about where he wanted to go and what he wanted to see.
Mike is at Day Hospice today and the nurse is coming this morning to do blood tests before breakfast. Every other day of the week I have to wake him up to make him eat breakfast and take medication, but on a Wednesday he always manages to wake up early and then moan that he can't have his breakfast because the nurse hasn't been.
My blog today sounds like I am really moaning about Mike, I am just very tired and fed up with not being able to sleep in my own bed. I love him so much, he just frustrates the hell out of me sometimes - this isn't all a new thing, he was quite good at winding me up before he was ill, I suppose that now I just feel guilty if I do it to him.
Wednesday 14 March 2007
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Thankyou
My first thank you must go to Mike, not only my husband but my very best friend. He has always been there for me and now I am doing all I can to be there for him. Unfortunately, nothing can prepare you for the devastating news that we received last June, and no text book can tell you how to behave and how to deal with it.
Mike has been so brave throughout all of this, we have laughed together and cried together, but Mike has found the strength to help me to continue to plan a future for me, the kids and the business. He really is a very special person.
The Kids
I don't know where I would be without Hannah and Cameron (though probably a little less grey). I need them to know that I really love them and appreciate them, even if sometimes because of the situation here stress gets the better of me and I snap.
The memory of the day that we told them that Mike's illness is terminal will haunt me forever. I felt so helpless, it is the first time that a kiss, a hug (or money) couldn't make the news any better for them. Mike insisted that he was the one to tell them, I can't imagine how hard it was for him, I think he's amazing and although it's hard to think of it now I think the kids will respect him for it too. Love you both x x
Jean & Eddie
I need to do a big thank you to Jean and Eddie (Mike's mum and dad). They arrived the morning that Mike was first admitted to hospital and stayed for fourteen weeks. They have been a tremendous support throughout all of this. Obviously they are grieving too, but the support that they have given to Mike, me and the kids has been fantastic.
They have helped both emotionally and practically, without them I do not know what we would have done - All the shopping, cooking, washing, ironing, cleaning and dog walking was done by them. Jean is the only person that has just hugged me and allowed me to cry until I have no more tears left. Eddie did loads of DIY jobs that Mike had planned for years (Mike has always liked the power tools and planning projects but not been very keen to do them). Between them everything was cleaned, painted, cleaned again and made sterile for Mike to have the very best chance of not getting any infections throughout his chemo.
I also thank them for appreciating that when things had settled slightly and I had the business organised they allowed us the time to get back to "normal" family life.
Family
Everyone has been brilliant, I worry that if I start naming people I might forget someone, but I will attempt to without sounding like I have won an Oscar or something.
Gill (Mike's sister) has been great - phones, texts and visits regularly (always good on a Saturday night when a visit from Gill and Pete includes a KFC). She sends good humoured cards regularly which always manage to make us smile.
Karen (Mike's sister) phones and visits regularly, her extensive medical knowledge has helped enormously by helping us to ask "the right questions". Karen did food shopping for us when all we had in the fridge was garlic bread and jam (not a nice combination).
Nicky and Adam (our niece and nephew) have helped us by just being themselves. They text and email the kids and visit whenever they can. They manage to make life seem normal. Nicky continues to call Mike by her pet name Uncle Tosspot which always lightens the mood.
More Family
My dad has always been at the end of the phone for me, I know that if I needed him he would get in the car and be here. I don't speak to my brother Mark as much as I should, for some reason when I come off the phone from a conversation with him I get really upset.
Our aunties, uncles and cousins have been great too. A special thanks to Chris and Wendy who send cards at regular intervals to let us know that they are still thinking about us - this means a lot.
Newport News
I don't know how to thank Marie, Ingrid, Judy (& David) and Mel enough. Without them at times there wouldn't have been any Newport News.
Everyone has changed their hours, extended their hours, changed their jobs to make sure that 900 customers get their papers every day, seven days a week. They have not only worked incredibly hard they have always been sensitive to the situation. Thank you all so much.
Not forgetting the delivery boys & girls who 99% of the time have been fab too.
Our customers have been really thoughtful too. In the first month of Mike's illness he received over 100 cards. Many customers ask for updates on Mike's progress on a regular basis. Newport is a place where news travels fast so most people know what is going on quite quickly.
Highfield
Thanks to all Mike's old colleagues from Highfield. Emma has been great, phones and visits regularly and helps keep Mike up to speed with any gossip he needs to know about. Cam, Steph, Matt and Sally have all visited too and brought with them their share of "important information" for him, not forgetting the fact that Sally ran a half marathon and raised funds for Willen Hospice - I really appreciate this as you will see below they have been a tremendous support to all four of us. Sherilyn has phoned regularly and visited - Mike was really disappointed that he was not well enough to make it to her wedding at Christmas. Sadly, Sherilyn is now ill too and our love and thoughts go to her, Mike and the girls.
I hope I haven't forgotten anyone because I know you have all been great.
And many more..........
There are so many more people that have helped in so many ways. I need to mention Andrew, my old boss - he keeps in contact at least weekly and as always is a really great listener.
Sadie from Country Clover Florist has been great, arrives with flowers every time the going gets tough. Sadie is also training hard to run The London Marathon in aid of Willen Hospice, although we are really proud of her for doing this I do have concerns that my chocolate sales are falling whilst she is in training. Alex and Ryan Pink from the cycle shop across the road have visited Mike in hospital and at home - they always manage to make him laugh.
The list is endless..........
Willen Hospice
A massive thank you goes to Willen Hospice. If this site gains nothing else I would like people to be aware of the amazing work that they do. I really wish that I could do something to promote the fact that they give you so much support in life and that the hospice is not a morbid place at all.
Mike attends the day hospice every Wednesday from 10.30 am to 3.30 pm. It gives him a chance to meet other people facing the same illness and the opportunity to do pottery and painting. I go to the carers group at the hospice on a Monday afternoon, all we do is eat cake and drink tea (not good for the ever expanding waist line, but very good for the soul). It is the one place in the world that you can talk about how you really feel and people really know how you feel because they are all going through it too.
The family support worker, Sandy is brilliant, she has supported us all so much - I don't know where we would be without her.
Liz is another star from Willen, she is the first contact that we had and has guided us the whole way through this horrendous journey. Like Sandy, Liz is always at the end of the phone to give advice and visits regularly as well.
If you click on the link below you will be directed to their website.
Willen Hospice
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